8. Key Points to remember

The role of family is critical in the care of persons with dementia

Not only do people with dementia need assistance with daily tasks but because of the progression of their cognitive impairment they also require that someone looks out for their best interests, in everyday decisions, medical care or financial management. 

Caregiving may be stressful and is multidimensional. Caregiving may be given in the context of family dynamics, family issues and tensions including economic issues.

Carers should not be encouraged to act or feel in a certain way because of expectations. Family meetings can help identify solutions and provide care planning. They can be conducted within practical and human rights based frameworks

In later stage dementia, partnerships with the Health Care team become more important. Health Care teams can provide support, give information and help the family to stay connected to the person with dementia. 

Trusting relationships can develop and Health Care Professionals can help to make informed decisions within a legal and ethical context. They can help carers build on their strengths, develop skills and adjust to the changing demands of caregiving. 

This in turn could help the family achieve greater psychological and physical resilience when faced with end of life period of their loved on and in their bereavement.