Book: End of Life Symptoms

Difficulty breathing

People with dementia at the end of life care stage may have difficulties breathing. If this is a new symptom or you feel it is causing your loved one distress ask for a medical review. They may change the position of the person in the bed, or may give medication which may relieve some of the distress.

Nausea/vomiting

Nausea or vomiting may occur for the person at the end of life care stage. Medications to reduce the symptoms can be given orally/as an injection.

Constipation

If the person has not had a bowel motion in a number of days, they may or may not be constipated. Discuss your concerns with the medical health care team.

Anorexia / Weight Loss

Anorexia and weight loss can be a normal part of the end of life stage of care. The body is winding down and does not require as many calories. The sense of hunger is also reduced for the person with dementia at this stage. If you are concerned speak to a health care professional.

Fatigue

As part of the winding down of the body in the end of life stage the person may become very fatigued and spend a lot of time sleeping.

Anxiety and Depression

If you feel your loved one is showing signs of anxiety or depression talk with your doctor or someone else on your care team about them. Get immediate medical help if you or a loved one is having thoughts of suicide.

Fever

Fever and sweating are common in the last days of life. This may be caused by infections, medications or other medical conditions. If you notice this inform the health care team. 

Comfort care is a priority at this stage and the health care team can help e.g. environmental changes, such as a fan in the room or lighter blankets or removing direct sunlight on to the bed by adjusting the blinds.